OHE at the PROMs Research Conference 2017

OHE at the PROMs Research Conference 2017 (Advances in Patient Reported Outcomes Research)

Following the success of last year’s inaugural conference in Sheffield (see here for a summary of OHE’s contributions), the second annual UK & Ireland PROMs Conference will be held at St Anne’s College, Oxford on 8th June 2017. This one-day conference will include a mixture of plenary sessions, oral presentations and posters by PROMs (patient reported outcome measures) researchers from across the UK and Ireland.

The event will bring together leading experts and early career researchers to engage with the latest advances in the field of PROMs research and implementation. Several members of the OHE team will be attending and contributing to the conference.

Bernarda Zamora will be presenting findings from an OHE research project which has developed new methods for analysing the distribution of EQ-5D observations. She will provide information about novel ways of describing the distribution of EQ-5D states observed in any given data set – the Health State Density Index and Health State Density Curve, and estimated Power Law functions. This research, funded by the EuroQol Research Foundation, is being undertaken in collaboration with OHE’s Yan Feng, Mike Herdman and Nancy Devlin, OHE Senior Visiting Fellow David Parkin, and Andrew Bateman of the Cambridgeshire Community Services NHS Trust. The methods can be applied to any patient reported outcomes data.

Koonal Shah will be presenting the methods and preliminary findings of two research studies currently in progress intended to generate stated preference data to support the development of a value set for the EQ-5D-Y, the ‘youth’ version of the EQ-5D. The first study seeks to obtain latent scale value using a discrete choice experiment. The second study explores alternative ways of anchoring those values at zero, as required for the estimation of QALYs. OHE’s research on EQ-5D-Y valuation is being undertaken by Koonal and Nancy Devlin in collaboration with Juan-Manuel Ramos-Goni of the EuroQol Office, Oliver Rivero-Arias of the University of Oxford, Simone Kreimeier of the University of Bielefeld, and Ben van Hout of the University of Sheffield.

Koonal is also co-author of a study on using patient valuations of EQ-5D health states to improve hospital performance comparisons, to be presented by Thomas Patton of the Centre for Health Economics, University of York.

Finally, Patricia Cubi-Molla will be presenting a poster entitled: Re-thinking the concept of experience-based values: setting the right framework to estimate the effect of experience on health. The poster will draw on preliminary findings from a research study funded by the EuroQol Research Foundation. 

For further information about the conference, click here.

For further information about OHE’s involvement in the conference, contact the OHE authors via our Meet the Team page. For general enquiries about OHE’s research on patient reported outcomes, contact Nancy Devlin.